WHO DECIDES FOR THE PATIENT?A REVIEW OF LITERATURE ON MEDICAL DECISION-MAKING IN PAKISTAN
DOI:
https://doi.org/10.62533/tp50h630Keywords:
Medical Decision Making, Autonomy, Paternalism, Family, CollectivismAbstract
Over the past two decades, a growing body of literature has examined medical decision-making in Pakistan across diverse clinical contexts, but the evidence remains fragmented because many studies are small in scale, disease-specific, or focused on a single stakeholder group. This review synthesizes published literature to identify prevailing attitudes, preferences, and practices concerning decision-making relating to the roles of patients, families, and physicians in medical decision-making. The analysis follows a stakeholder-centric framework comprising three interconnected lenses: patient/public perspectives, healthcare provider perspectives, and conceptual frameworks. The findings suggest that medical decision-making in Pakistan is shaped by socio-cultural and structural context in which care occurs. Rather than fitting neat binaries of individual autonomy versus collectivism, or a simple account of paternalism, decision-making appears to operate through a relational structure in which patients often want substantial information and recognition, families remain central to care and deliberation without necessarily being desired to lead, and physicians are trusted to provide both expertise and direction. The central task, therefore, is to make this relational process more ethically robust by further exploring patient and public perceptions and aligning decision-making practices with the cultural and socioeconomic realities of the Pakistani context.
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Ahmed, S., Jafri, H., Rashid, Y., Yi, H., Dong, D., Zhu, J., & Ahmed, M. (2019). Autonomous decision-making for antenatal screening in Pakistan: Views held by women, men and health professionals in a low-middle income country. European Journal of Human Genetics, 27 (6), 848–856.
Ahmed, S., Yi, H., Dong, D., Zhu, J., Jafri, H., Rashid, Y., Ngan, O. M. & Ahmed, M. (2018). Interpretations of autonomous decision-making in antenatal genetic screening among women in China, Hong Kong and Pakistan. European Journal of Human Genetics, 26 (4), 495–504.
Alden, D. L., Merz, M. Y., & Akashi, J. (2012). Young adult preferences for physician decision-making style in Japan and the United States. Asia Pacific Journal of Public Health, 24(1), 173–184.
Alden, D. L., Friend, J. M., Lee, A. Y., de Vries, M., Osawa, R., & Chen, Q. (2015). Culture and medical decision making: Healthcare consumer perspectives in Japan and the United States. Health Psychology, 34(12), 1133–1141.
Alden, D. L., Friend J, Lee PY, Lee YK, Trevena L, Ng CJ, Kiatpongsan S, Lim Abdullah K, Tanaka M, Limpongsanurak S. (2018). Who decides: me or we? Family involvement in medical decision making in Eastern and Western countries. Medical Decision Making, 38(1), 14-25.
Aslam, F., Aftab, O., & Janjua, N. Z. (2005). Medical decision making: The family–doctor–patient triad. PLoS Medicine, 2 (6), e129.
Baig, A. M., Humayaun, A., Mehmood, S., Akram, M. W., Raza, S. A., & Shakoori, T. (2020). Qualitative exploration of factors associated with shared decision-making in diabetes management: A health care provider’s perspective. International Journal for Quality in Health Care, 32 (7), 464–469.
Charles, C., Gafni, A., Whelan, T., & O’Brien, M. A. (2006). Cultural influences on the physician–patient encounter: The case of shared treatment decision-making. Patient Education and Counseling, 63(3), 262–267.
Hussain, M., Shair, N. A., Sulehri, F. U., Zubair, M., & Jadoon, N. A. (2014). Information needs and preferences: Perspective of Pakistani cancer patients. Asia-Pacific Journal of Clinical Oncology, 10, 175.
Jafarey, A. M., & Farooqui, A. (2005). Informed consent in the Pakistani milieu: The physician’s perspective. Journal of Medical Ethics, 31 (2), 93–96.
Jawaid, M., Qamar, B., Masood, Z., & Jawaid, S. A. (2010). Disclosure of cancer diagnosis: Pakistani patients’ perspective. Middle East Journal of Cancer, 1 (2).
Khowaja-Punjwani, S. (2018). Pakistani parents understand informed consent but not assent: A pilot study. Eubios Journal of Asian & International Bioethics, 28 (5).
Kumar, S., Shaikh, A. J., Khalid, S., & Masood, N. (2010). Influence of patient’s perceptions, beliefs and knowledge about cancer on treatment decision making in Pakistan. Asian Pacific Journal of Cancer Prevention, 11 (1), 251–255.
Malik, S., Allen, R. J., Vachharajani, T. J., Kluger, B., Ahmad, I., & Saeed, F. (2022). Dialysis decision making, dialysis experiences, and illness perceptions: A qualitative study of Pakistani patients receiving maintenance hemodialysis. Kidney Medicine, 4 (11), 100550.
Laidsaar-Powell, R. C., Butow PN, Bu S, Charles C, Gafni A, Lam WW, Jansen J, McCaffery KJ, Shepherd HL, Tattersall MH, Juraskova I. (2013). Physician–patient–companion communication and decision-making: a systematic review of triadic medical consultations. Patient education and counseling, 91(1), 3-13.
Memon, R., Asif, M., Shah, B. A., Kiran, T., Khoso, A. B., Tofique, S., ... & Edwards, S. J. (2024a). Clinicians’ experiences of obtaining informed consent for research and treatment: A nested qualitative study from Pakistan. BMC Medical Ethics, 25 (1), 131.
Memon, R., Asif, M., Shah, B. A., Kiran, T., Khoso, A. B., Tofique, S., ... & Edwards, S. J. (2024b). Ethics of informed consent in medical settings: A qualitative study of clinicians managing patients presenting with self-harm in Pakistan.
Mir, G., & Sheikh, A. (2010). “Fasting and prayer don’t concern the doctors ... they don’t even know what it is”: Communication, decision-making and perceived social relations of Pakistani Muslim patients with long-term illnesses. Ethnicity & Health, 15 (4), 327–342.
Moazam, F. (2000). Families, patients, and physicians in medical decisionmaking: A Pakistani perspective. Hastings Center Report, 30 (6), 28–37.
Padela, A. I., Malik, A. Y., Curlin, F., & De Vries, R. (2015). [Re]considering respect for persons in a globalizing world. Developing World Bioethics, 15 (2), 98–106.
Qidwai, W. (2003). Paternalistic model of medical practice. Journal of College of Physicians and Surgeons Pakistan, 13 (5), 296.
Rahman, R., Matthews, E. B., Ahmad, A., Rizvi, S. M., Salama, U., Samad, L., & Khan, M. (2019). Perceptions of patient-centred care among providers and patients in the orthopaedic department of a tertiary care hospital in Karachi, Pakistan. Journal of Evaluation in Clinical Practice, 25 (6), 1160–1168.
Saeed, F., Sardar, M., Rasheed, K., Naseer, R., Epstein, R. M., Davison, S. N., ... & Fiscella, K. A. (2020). Dialysis decision making and preferences for end-of-life care: Perspectives of Pakistani patients receiving maintenance dialysis. Journal of Pain and Symptom Management, 60 (2), 336– 345.
Samanta, J., & Samanta, A. (2013). Exploring cultural values that underpin the ethical and legal framework of end-of-life care: A focus group study of South Asians. Journal of Medical Law and Ethics, 1, 63–78.
Waheed, H., Haider, S., Iqbal, Q., Khalid, A., Hassali, M. A., Bashaar, M., & Saleem, F. (2020). A cross-sectional assessment of shared-decision making among patients visiting public healthcare institute of Quetta City, Pakistan. Malaysian Journal of Pharmaceutical Sciences, 18 (1), 15–29.
Zafar, W., Hafeez, H., Jamshed, A., Shah, M. A., Quader, A., & Yusuf, M. A. (2016). Preferences regarding disclosure of prognosis and end-of-life care: A survey of cancer patients with advanced disease in a lower-middle-income country. Palliative Medicine, 30 (7), 661–673.
Zaman, R.M. (2014). Parenting in Pakistan: An Overview. In: Selin, H. (eds) Parenting Across Cultures. Science Across Cultures: The History of Non-Western Science, vol 7. Springer, Dordrecht.
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Data Availability Statement
Used data that is already available in the public domain.